INOD Articles/Videos

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ARTICLES

Dr. House, Where Are You?
Marianne Genetti

"Jane's fingers now shake to the point that she can't type. She is tired. At times her belly swells suddenly -- then just as suddenly, subsides. She thought there was hope when in March 2008, ABC News wrote an article about her undiagnosed case and published it on their web site. There were many comments posted in response to the article but none contained a glimmer of a hope regarding a diagnosis. Jane can no longer work, no longer has health insurance, no longer has savings and no longer has income."

Click here to read Dr. House, Where Are You???


Insights Into Undiagnosed Illnesses
Marianne Genetti

"In the United States a rare disorder is deemed to be one which affects less than 200,000 people. The prevalence of pernicious anemia (B-12 deficiency) is estimated at more than 400,000. So if pernicious anemia is not that rare, why was it not diagnosed? And how could such a serious error have occurred?"

Click here to read Insights Into Undiagnosed Illness


Not All Zebras Live in Zoos: Nightmares of the Undiagnosed
Eileen Radziunas

"Living in a body consumed by a serious, undiagnosed and potentially life-threatening disease, left untreated, is a nightmare no one should have to live … yet, in reality, thousands do.  Like a prisoner erroneously incarcerated for a crime he did not commit, the undiagnosed rare disease patient knows, firsthand, the frustration, shame and trauma of being misjudged.  Unlike the unfairly accused, whose sentence is well-publicized, the patient’s is far more discreet – a private, internal hell … that is his and his alone."

Click here to read Not All Zebras Live in Zoos

 

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INOD articles and mention of INOD in the media


Dr. House! Where are you??? - INOD article about the need for a medical specialty in “diagnosis”. http://inod.org/dr_house.aspx

Insights Into Undiagnosed Illness -  INOD article that is sent to those who contact INOD for help.  http://inod.org/insights.aspx

INOD’s website - /

INOD on YouTube - http://www.youtube.com/user/inod2009?ob=0&feature=results_main

INOD on radio: Beth Perrell of Retrospect on WDBO - http://tinyurl.com/inod-radiofinal

Medical Mystery: When You Can't Get a Diagnosis – March 2012 issue of More magazine.
http://www.more.com/medical-mystery-diagnosis

Need for Medical Detectives Grows in Health Care Professions
– Braintrack, Feb. 2012
http://www.braintrack.com/college-and-work-news/articles/need-for-medical-detectives-grows-in-health-care-professions-12020801

Misdiagnosis: What to do when your doctor doesn't know –July 2011 issue of the AARP Magazine. http://tinyurl.com/aarp-inod

Undiagnosed Diseases Program (NIH) - https://rarediseases.info.nih.gov/guides/pages/24/tips-for-the-undiagnosed

Overstretched medical mystery program takes a breather – August 2011 issue of Nature Medicine. http://tinyurl.com/inod-naturemed

INOD listing with the Community Foundation of Central Florida and with Guidestar -
http://cfcf.guidestar.org/NonprofitProfile.aspx?OrgId=4041

Health column of the Los Angeles Times  - http://tinyurl.com/inod-latimes

Hazleton Native Honored for work with undiagnosed – Hazleton, Pa., Nov. 5, 2011  http://standardspeaker.com/news/hazleton-native-honored-for-work-with-undiagnosed-1.1227945

Not All Zebras Live in Zoos:Nightmares of the Undiagnosed – Article by Eileen Radziunas, INOD Board Member.  October 2011  http://tinyurl.com/zebras-zoos

Woman’s Foundation Helps Those In Need Of Diagnosis – Times Leader, Wilkes-Barre, Pa., June 1, 2008 http://www.checkorphan.org/grid/news/people/woman-s-foundation-helps-those-in-need-of-diagnosis

Spontaneous Inflating Abdomen: Untreated, Undiagnosed and Unhappy – ABC health news online. http://abcnews.go.com/Health/MindMoodNews/Story?id=4403716&page=1

Health agency puts spotlight on mystery diseases - May 22, 2008, Nature magazine.
http://www.nature.com/news/2008/080519/full/news.2008.840.html#cor1

News From INOD (INOD’s newsletters) - http://inod.org/Newsletter.aspx

 


Disclaimer

This website is provided as an information service only. It is not intended to provide medical advice. Every effort has been made to ensure that the information on this website is correct, but In Need Of Diagnosis, Inc (INOD) does not accept any responsibility for action or omission based on inadvertently incorrect information posted on this website by In Need Of Diagnosis, Inc (INOD) or by support groups. It is strongly recommended that persons wishing to use information obtained on this website, first consult their medical practitioner.